Thursday, January 12, 2012
Need advice desperateley?
Hello..I'm female and 30 yrs old..I fell ill at 21 and was diagnosed 2yrs later as having a borderline lyme test and systemic disease..major neurological symptoms..brain fog..raynaueds..horrible headaches like never before..new onset siezure activity and a brain spect scan consistent with severe neuro lyme or severe cns lupus..up til now my lupus tests negative...been seeing a reumatologist internist who is a lyme speciast..recently have develped alopecia..severe joint bone pain my sed rate has been up for months now which is new and elevated platelets for yrs..have been told protein was found in urine on 2 occasions haven't done a urinalysis lateley..my dr said based on my recent elevated sed rate and high platelets and supposidly some abnormality on autoimmune panel was pos..the nurse that called and told me was sweet but when I asked her if she knew what autoimmine disease it was she wasn't really givin me a straight answer..dr called in methltrexate which scares me...very potent drug...reumatiod arthritis neg, thyroid neg, seems all the peices are adding up to lupus???any1 have any thoughts..I see her again in 2 weeks..wish I knew now being sick 9 yrs without a dr lookin me in the face with a straight up answer is hell on earth...any input..with my abnormal brainscans and abnormal bloodwork as well as clinical findings and symptoms...do you think she's barking up the wrong tree still treating the lyme when most likely infection is gone and per her suggestion has triggered an autoimmune disease most fitting...lupus???
Subscribe to:
Post Comments (Atom)
0 comments:
Post a Comment